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Living My Real

A Day in The Life of Our Medical Journey

Credit: Home. Life. Encouragement

This is how I am starting my day again. Sitting in a doctor’s office parking lot.

Today is a bit harder though. Today I could just sit here and weep as my daughter walks off by herself to go get 25-30 nerve blocks in her head for another month.

I’m choosing to not give in to my emotions though in just the off chance the “Corona Police” are not at the front door inspecting everyone (please, do not criticize my response). I know they are there to help and protect others, but when you live what we live, it isn’t easy to run into this “all” the time.

Thanks to this Corona Pandemic she has to do all her doctor appointments alone, because they will not let me anywhere near the building.

Seriously people, who wants to get all of these shots in their head and do it alone?

I can speak for myself, no, not me! I hate shots and I’m talking just the ones you get in your arm.

But for my precious daughter, she is getting them in her head to help with her chronic migraines. It is the only way she can manage them now. She does this once a month, but who knew we would ever get to a point in life where she would be forced, by others, to have to endure this all alone.

Today is one of those difficult days to watch her suffer and struggle.

I have already texted my husband asking, why?!? Why does she have to battle to live a “normal” life.

Why does everyday have to be one where she endures pain and overwhelming fatigue?

Why can’t she be healthy and live a “typical” college kid’s life?

This has been an exasperating week for us, which is probably why I just want to sit and weep and maybe even just cry.

Our health insurance, which is suppose to be the top of the line, has decided that because she reached her “projected” graduation date that they are going to cancel her health insurance in a matter of days.

These are the same people who pay a “ton” of money for her health care already.

So we have had to jump through some mega hoops to get the proof from her college, (that is closed down due to the Covid-19 crisis), to prove she is still in college.

I am completely baffled as to how and why this is happening still.

We are left now praying that everything we submitted will work to prove she is still in college. If just one person slows this process down, she will be left not covered by health insurance.

Without health insurance all her treatments will stop, she will not have access to the specialists we spent years trying to find, and we will not be able to afford all the medicine she is on.

This is such as scary thought as I write it. It should be something we shouldn’t even have to be going through. The system is seriously broken for this to be occurring. This was something we knew would be coming on her 23rd birthday, and that we were prepared mentally for, and would not have waited until the last minute, or in this case, second, to fix it.

No, in this situation, someone made a serious mistake 2 years ago and we are just now finding out about it and have literally hours to fix it before the damage it will cause to my daughter will be massive, debilitating and permanent.

So, I sit here with a knot in the pit of my stomach, looking at a busy parking lot. There is an ambulance and a fire truck at the entrance where I keep looking up to see if my daughter is walking out of.

I’m left to sit here asking God why? Why does she have to suffer? What will be her story? What will be her testimony? Why does every day have to be a battle?

Until God decides the time to reveal those answers, I know I just have to keep trusting in Him for the direction, protection, and discernment.

Are you in a similar battle? I know others are. Please know I’m here with you. I know the lonely feeling this life brings. Please know if you are, I standing beside you.

You’re not alone!

#Findingyourcourage, #Keepingitreal, Courage, Exhausted, Journal Journey, Journey, Keeping It Real, Life, Rawness, Real

Acceptance is Half the Battle

Journaling Journey

As I am beginning my day, which has not been an easy one to start, I am feeling a bit better than yesterday, in that I did manage to get caught up on a few things around my home that were weighing heavy on me.

As a result, I am not carrying those burdens today, but I am, however, carrying a huge burden for my business and wrapping up unfinished projects.

Yesterday, I did manage to prepare a few boards for signs, which makes me very happy. I re-stained one this morning so I will be able to finish it this weekend, thankfully.

I do, however, have a couple of projects that have me overwhelmed in finishing, so I am hoping today I can come out from under the weight of them.

My daughter and I are attending a local womens inspirational conference tonight and tomorrow and I have to confess, I am a little apprehensive about it. I am sure it will be great opportunity and hopefully inspiring, but I do not do well with things that are on Friday nights, as this is the night I am exhausted from the events of the week.

Our dear friend who is attending thought it would be a great opportunity for me to build my blog into something amazing and for us to grow our business as well. She also thought we would be blessed by the amazing women speakers who will be speaking too.

I hope she is right, as right now I can only see and feel my total exhaustion.

As a result of this convention tonight my daughter had to decide what she would do about her weekly IgG Infusion. We decided due to the late hour we should come home tonight at that tomorrow night might work better since it takes about 2 1/2 hours from preparation to completion to finish. This is the first time a Friday night activity has presented itself a problem with her weekly infusions. I am sure it is the first of many to come. As I stated yesterday, this is what it is like to live with a chronically ill person. You have to constantly work around appointments, treatments, and sicknesses, but it is not her fault and we do what we need to do to work with it.

Acceptance is half the battle of working around it.

@homelife&encouragement

Finding my Courage today will be to fight through the frustration of finishing these projects in order to walk away with a feeling of satisfaction knowing they are done and my customers will be happy.

Do you ever feel like this?

My Friend, what does Finding Your Courage look like to you?

Leave a comment below if you wish to share your day, frustration, or courage.

#keepingitreal, #Findingyourcourage