Blessings, Holiday, Image, Inspiration, Journey, Joy, Keeping It Real, Life, Love, Parenting

Recognizing My Daughter Today

It is National Daughter’s Day

I am recognizing my sweet daughter for National Daughter’s Day.

I love you Kiddo. Your heart is a sweet and gentle one. You are fun loving and I just love your sense of humor. You always know how to make me laugh at just the right times.

God has special plans for your life and although it is busy now and isn’t always easy for you, one day it will all be worth it.

I love you Katarine!! You make me proud to be you momma!

Chronic Migraines, Courage, encouragement, Hope, Inspiration, Journal Journey, Journey, Keeping It Real, Life, Medical Journey, pain, Parenting, Rawness, Real, Rest, Strength

The Battle of Courage

Journaling Journey

It is Friday night again and we are sitting here together as Kiddo does another week of IgG Infusions.

This is not the best way for her to spend her Friday night, as most college students her age are out having fun, but doing it tonight is proving to be so much better for her.

By doing this on Friday night she is able to go to bed and sleep off the side effects that she was was trying to work (literally through) before she changed to Friday night. She is also able to rest her body tomorrow as she struggles through the remaining side effects.

She is amazingly strong and courageous. Every time she does this, she amazes me at the strength she has to sit there and inject 4 separate needles into her legs and then sit there for an hour or more while she waits for the infusion to finish.

For all she battles with her body on a daily basis, it breaks my heart to watch her, but I also find a sense of pride to call her my daughter because I know she has dig deep down inside to do something that the rest of us take for granted every day.

Her road ahead looks a bit dark as we struggle to figure out what it is going to take to give her her life back, but thankfully after four long hard years of struggling already and battling for the fights we have won and battling the fights we have lost, we are closer now to finding this solution than she has ever been in the years back.

It is my prayer that the journey she is on with the new medicines and treatments that there will be an end to this battle she battles within her body.

I was going to get ready to close until she just read me this amazingly fitting bible verse which I will share with you as well,

God is with her, she will not fall. Ps 46:5

God, you are amazing with your timing.

I was not going to write tonight as I often feel like what I write is not important and would not affect anyone else, but with closing with this verse and knowing Kiddo has no idea what I am doing, I know I was meant to write this tonight.

If you are battling a battle that is one you never dreamt you would battle, know you are not alone.

God has your back just as He has my daughter’s. He is with you, My Friend!

Find peace and comfort in this tonight.

Now I am going to close as I am sure Kiddos infusion should be close to being finished.

My friend, rest tonight. Allow God to take the burdens of the week away from you and sleep in the protection of His arms tonight.

Holiday, Journal Journey, Journey, Life, Parenting, Update, Weariness

The Mother of Many Tasks

Journaling Journey 

It has been a busy past two weeks. I found myself lost in the physical day to day and did not take the time to process any thoughts I may have had along the way. 

I found myself not only being a nurse but found myself also being a motivator and a teacher again. My Kiddo found herself up against a rock and a hard place in trying to meet important deadlines to finish her college classes from where she fell behind while experiencing the hardship of her two-month-long migraine and then finding herself extremely sick with this ugly month long cold. 

I tried to encourage her that she was stronger than she thought she was and to help her to see the confidence I had in her, for herself. I helped to read some of the work to her, as the magnitude of reading she had to do was intense and a migraine now just was not something that could happen. It could not, it was not an option. 

I found myself being a  “nurse” to my daughter again because she is going on four weeks of being sick with an ugly cold and now my husband, who lost the entire week of work last week, has it as well. 

Her cold took a significant turn for the worse over the long Thanksgiving Holiday and so that set her back in her classes by a few more days as well. It is hard to focus on homework when you have a sinus infection, pink eye, strep throat, and laryngitis. 

Thankfully because she communicated with her professors along the way, they were more than accommodating, and so I, as her mom. was extremely thankful. 

This is a side note, I am a happy Mom now, as she just told me as I was writing this, that she just submitted the final project to one of her classes thus officially completing another class for this semester. Now she will have more time to work aggressively to finish up another one due this week. 

Next weekend will officially begin our “joyous” holiday season. The stress of classes will be behind us and the fun part of Christmas can begin. We can start our Christmas shopping, baking, and movie watching and even more so when the school she works at shuts down for the Holiday.

I know between her being sick and stressed out, it is hard to have my Holiday cheer completely intact. It is hard to find the time to bake my goodies and shop for presents or make homemade gifts, when we are running back and forth to doctor appointments, taking her to work as well as running errands. 

Thankfully I was able to get the house decorated inside and outside, so our home is festive, but the emotional joy of the season has been on hold and will continue to be until Friday. 

We have declared next Monday as our day of celebration. We have set a goal for completion as all her classes have to be done and turned in between now and Friday. I feel that we can celebrate together, since I bore a lot of the stress of her being sick and behind this semester. 

Between the tears that have been shed for the intense physical pain (that almost hospitalized her) and the anxiety of being behind in her classes, we have earned the right to celebrate together. 

It is my hope and desire this week will be a bit easier on us. I seriously need my family to get well again. Especially since now they have successfully shared this crummy cold mess with me. I do not have the time or energy to be sick as well. I am just praying that if I continue to have the mind over matter philosophy to this that it will go away quickly. I am trying very hard to not recognize it and if I do not, then it won’t get as bad as it is trying to do.  

With all of this being said, I need to complete my thoughts and get to work on a couple of orders we have for our business (@HL&E Designs). I am carrying a huge burden to get them done and delivered to their respective customers.  

Thank you for patiently reading my journaling journey of random thoughts. It truly does help to release what I am thinking through writing my words down in a safe place. 

It is my hope and prayer your week is a pleasent one and that you too are able to find some Christmas joy in your heart.  

Until I write again…  Have a calm and refreshing day. 

Chronic Migraines, Journal Journey, Journey, Migraine, Parenting

Sunday Summary

Journaling Journey

Entry 4

We made it to church today which was a big deal since we have not been making it due to Kiddo’s migraines. Unfortunately, she is now suffering with a headache and I am praying she is able to catch it and keep it from getting worse.

She complained about having watery eyes this morning before church and we are learning this is one of her pre-dromes. She is extremely tired and I am seriously wondering if this is setting her up for a migraine tomorrow. I am always watching her to determine what are triggers that cause her migraines, but it is so hard because of her constant pain.

She is supposed to contact her Migraine Specialist to let them know how she is doing post nerve blocks. I am not even sure what to think. Across the board she has done better, but I do not think today was to be another pain day especially if this is setting her up for a migraine tomorrow.

Her objective tomorrow is to get up and start working on catching up in her college classes. She is so far behind, it is crazy, but thankfully her professors have been very understanding. I am praying by the time her next semester begins her Aimoveg kicks in and she truly gets pain relief.

It is my hope on my end to paint my kitchen and living room over the next couple of days because my husband has to go out of town for work. These rooms are in desperate need of some love, but I also know everything is dependent oh how Kiddo wakes up. I made sure the paint I will use has zero VOC’s in it so I should not be a cause for her migraine.

It is my prayer Kiddo will be able to sleep well with the time change and she wakes up with pain relief. It is also my prayer she will be able to have a productive school week so she does not get stressed out over how far behind she is.

If you feel inclined to join me in praying this for her, please know I will appreciate them.